What are your goals?
5th question of the Be You Collection
Kaylei McGarrett: Through my brother’s diagnosis I found the wonderful world of child life. I have dedicated the last 4 years to making a pathway so that I too can be a resource for families in need.
Chloey Rudy: I hope that I can be successful. Whatever I do, I want to expand my capabilities and reach my full potential whenever it comes to my future.
Matthew Moon: I want to be an author when I grow up. I want to write funny stories that make people laugh.
Ella Moon: I would actually really like to play basketball in college but after that, I want to work with kids who have special needs or start some sort of project that spreads awareness about Sanfilippo.
Jan Ballbé: I want to be a fireman.
Grey Chapin: I hope to continue this website for many years to come. While it is currently mainly known within the Sanfilippo community, my goal is to spread the word about this resource to all siblings of terminally ill children. I believe that if the mission of my site is spread around the world, more resources will be created for siblings and they will no longer feel alone.
Nic Bouzakis: I hope to go to Ohio state for wrestling and win the Olympics.

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When you and your partner start deciding to have children, your mind may start to dream up all of the different scenarios and directions your life may take you. The one thing you probably never dream up is what life would be like with a child with a disability. Read More

We Do Our Part for Haidyn
Due to the Coronavirus, many have been social distancing for months now. We take this seriously for kids like Haidyn, with Sanfilippo Syndrome. While we may not be required to stay home anymore, I will keep sharing the stories of Sanfilippo families like mine as a reminder to do your part and be cautious for the sake of others. Here's why you should do your part for Haidyn. Read More