One gene
One cell
One little mishap
One gone wrong
None goes well
The disease
The struggle
Come together
Make their lives
For the better
A very sticky situation
Has been placed
on our own selves
This is the rare redirection
That destroys our sibling’s health
Their loss
Make it good
Make it whatever they dream
It’s not yours
But it will help them
Do it for them
The end may be approaching
For them and your soul
But they go towards the north
They’ll go higher up
They’ll be the ones to make others look up.
Why Super Siblings Deserve All The Hype
When you and your partner start deciding to have children, your mind may start to dream up all of the different scenarios and directions your life may take you. The one thing you probably never dream up is what life would be like with a child with a disability. Read More
We Do Our Part for Haidyn
Due to the Coronavirus, many have been social distancing for months now. We take this seriously for kids like Haidyn, with Sanfilippo Syndrome. While we may not be required to stay home anymore, I will keep sharing the stories of Sanfilippo families like mine as a reminder to do your part and be cautious for the sake of others. Here's why you should do your part for Haidyn. Read More