I peered over the sloping back of the couch, vision divided between peacock patterned fabric and white doorway. My mother blindly cupped his greasy cheek in her prematurely wrinkled hand. She saw past so much.
“Mister Ben Siedmannn, can you say mama? I’m your ma…? Ma!”
“Mahm”
“That’s right Ben jammin, I’m your mama.”
It occurred to me that I don’t think he knows my name. It’s been a few years since he said anything new, and even more years since he wrote something on paper. It’s not his fault that little sisters who play with Barbie dolls and obsess over horses aren’t the priority of his unfinished mind. But I can’t remember hearing his beautiful, horrible tongue say Isabelle.
Why Super Siblings Deserve All The Hype
When you and your partner start deciding to have children, your mind may start to dream up all of the different scenarios and directions your life may take you. The one thing you probably never dream up is what life would be like with a child with a disability. Read More
We Do Our Part for Haidyn
Due to the Coronavirus, many have been social distancing for months now. We take this seriously for kids like Haidyn, with Sanfilippo Syndrome. While we may not be required to stay home anymore, I will keep sharing the stories of Sanfilippo families like mine as a reminder to do your part and be cautious for the sake of others. Here's why you should do your part for Haidyn. Read More